CINC-NEWSLETTER OCTOBER 2024
IMPORTANT NEWS
- Full Time Pediatric Immunology position available at BC Children’s Hospital and The University of British Columbia. It’s a great job with a committed team in a lovely part of the world! Full details are available here: https://jobs.phsa.ca/job/
vancouver/pediatric-clinical- immunologist-division-of- immunology-bc-children-s- hospital-and-university-of- bri/909/70364369072 - The prime editing clinical trial for p47 Chronic Granulomatous Disease is now open at CHU-Ste. Justine. It is industry driven/sponsored (Prime Medicine | Delivering on the promise of Prime Editing). If you have any non-transplanted p47 CGD patients please reach out to Elie Haddad at elie.haddad@umontreal.ca
- Pharming is conducting a clinical trial in PIDs with immune dysregulation linked to altered PI3Kẟ signaling. It is in Phase II now with NIH as the sole site, where patients can be sent. The Phase III trial in adults and adolescents may include Canadian Sites.
CINC EVENTS in Banff during the CSACI Annual Meeting (Nov 6-10)
- Friday Nov 8 @ 8PM: CINC-Pharming cocktail/desserts event
- Invited guest: Dr. Jolan Walter from the University of South Florida and John Hopkins All Children’s Hospital
- “The new quest in IEI with immune dysregulation: how to effectively modulate the immune system?”
- The Vermillion Room Restaurant @ Fairmont Banff Springs Hotel
- See attached invitation.
- Please RSVP by replying to me only no later than October 28th to finalize the numbers with the venue.
- Saturday Nov 9, 2:30-5PM: CINC 2024 Business Meeting
- The Fenlands Banff Recreation Centre
- A 6-minute drive from the Fairmont Banff Springs. We will organize carpooling among the people driving to Banff from Calgary.
- For those of you not coming to Banff, there is a Zoom link in the event details on the website and will also be sent to your calendars.
- Invited guest: Dr. Adam Graefe from the Berlin Institute of Health at Charité
- “RareLink for CIEINR: Enhancing Sustainable Data Management for Modern Rare Disease Registries through Interoperability and Ontology Integration in REDCap, Enabling Advanced Analytics and AI Applications”
- If you haven’t told me that you will be in Banff, please let me know. I will be creating a separate e-mail list to communicate with attendees and avoid spamming the rest of CINC members.
- Highlighting CINC members presenting at the CSACI Annual Meeting
- Thursday, Nov 7, 1-4PM, Immunodeficiency Canada Symposium: all of your trainees!
- Friday, Nov 8
- 10-11:15AM, Concurrent Session 1B
- Luis Murguía-Favela: “Approach to IEI in Pediatric Patients”
- Hugo Chapdelaine: “Adult-onset Immunodeficiencies”
- Don Vinh: “Non-mendelian Mechanisms of IEI”
- 11:30-12:30, Concurrent Session 2B
- Sneha Suresh: Literature Review
- 2-3:45PM: Concurrent Session 3A
- Vy Kim: Section 3 Workshop 1, Obtaining Informed Consent.
- Saturday, Nov 9
- 8:30-10AM, Plenary Symposium 3
- (Don Kohn from UCLA: “Gene Therapy”)
- Nikki Wright: “Canadian Perspective on Gene Therapy”
- Kyla Hildebrand: “Immunizations in IEI”
- 10:15-11:30, Concurrent Session 4B
- Not CINC members but relevant Immunology-related presentations
- Aru Narendran: “Primary Immunodeficiency Gene Alterations and Pediatric Cancers”
- Michele Ramien: “Dermatologic Manifestations of IEI”
- 10:15-11:30, Concurrent Session 4A
- Stephen Betschel: “Hereditary Angioedema: expanding the Diagnostic and Management Landscape”